Just the Right Resources

Curated for EDS, POTS, MCAS, Hashimoto’s, Sjögren’s, and the beautifully complicated lives we live with them.

Doctor with Notebook

Sjögren's and Neuropathy: The Guidelines We've Been Waiting For

For years, peripheral neuropathy in Sjögren’s patients was poorly understood, inconsistently diagnosed, and even more inconsistently treated. That’s starting to change. In 2026, a multidisciplinary team of neurologists and rheumatologists convened by the Sjögren’s Foundation — published the first-ever clinical practice guidelines for evaluating and managing peripheral nervous system manifestations in Sjögren’s disease. If you’ve experienced numbness, tingling, burning sensations, or unexplained weakness, this is worth reading. The guidelines cover how neuropathy should be diagnosed, what treatment approaches are supported by evidence, and — critically — why a team approach between your neurologist and rheumatologist isn’t optional. It’s the standard of care.

The Bear Essentials

Reliable information about hidden disabilities is out there — it just takes a research obsession, entirely too many browser tabs, and a level of hyperfocus that I happen to have in abundance. Hi, that’s me. Lucky us.

Understand Your Body (coming soon)


Advocate for Yourself (coming soon)
Make Life Easier (coming soon)

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